Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Live Cam Link: https://zurl.co/mn7D#LightthenightforALSP #NiagaraFalls #WhatawaytoendALSPAwarenessMonth
1
To view or add a comment, sign in
More Relevant Posts
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Register today for Biomarkers 102, a follow up to Biomarkers 101. Dr. Fanny Mochel answers ALSP Community member's questions about biomarkers. https://zurl.co/eOmF #Biomarkers102 #Getyourquestionsanswered #Registertoday
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
See AlsoCanadian Hemochromatosis Society sur LinkedIn : LIVE NOW! Niagara Falls - The Falls CamCanadian Hemochromatosis Society on LinkedIn: In honour of World Hemochromatosis Awareness Week, the Nova Scotia…Talisa King on LinkedIn: LIVE NOW! Niagara Falls - The Falls CamTalisa King on LinkedIn: https://lnkd.in/e5mQqUnN#WordoftheWeek #Knowledgeispower #CSF1R #Mutation
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Introducing The Blog, by Sisters' Hope Foundation. Each week, a new blog will be posted. During the month of June, we will run a series on safety in honor of National Safety Month. Check out blog post #1: Home Safety and Security. https://zurl.co/ULOe #NationalSafetyMonth #Blog1
1
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Support Sisters' Hope Foundation and shop our Amazon Wishlist. We are gearing up for Volunteer Day and will be sending out our Doctor Tool Kit to numerous neurologists to spread the word of ALSP.https://zurl.co/eudj#VolunteerDay #AmazonWishlist #Support
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Groundbreaker. Leader. Advocate. Do you think of anyone in the rare disease community who embodies these qualities? Nominate them for the RARE Champions of Hope awards by Friday, June 7 at 12:00pm (noon) EST. https://zurl.co/hb2i
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
#Juneflowers #Roses #Inspiration #Hope #Possibility
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
ICYMI: Niagara Falls was lit up pink and purple for ALSP Awareness last night! #ALSPAwareness #NiagaraFalls
13
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Tag your favorite podcast#Engage #Podcast #Listen
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
One year ago, Erin Sullivan joined Sisters' Hope Foundation as Project Manager. During the last year, Heidi and Erin have shown they are a mighty force working for the ALSP Community. Today we are excited to announce that June 1, 2024 Erin will be assuming the role of Executive Director for Sisters' Hope Foundation. Heidi and Erin will continue working side by side to support the ALSP community, raise awareness about this disease, and bring about positive advancement in research and disease therapies. Congratulations, Erin!
19
Like CommentTo view or add a comment, sign in
4,794 followers
- 842 Posts
View Profile
Follow